Thursday, 30 November 2017

Day 26 to Day 30 - Recovering and Update

Wednesday, November 29

I last posted on Saturday when I didn't have a good day. I indicated that I had hoped to go to church on Sunday morning. Sunday morning, I awoke and still was not feeling well. My stomach was queasy and I was very tired. I slept in and was not able to be up and going to church in time. It was close to 12 noon before my stomach and digestive tract started to calm down and I was able to get dressed.

At that point, on Sunday, Hubby wanted to get me out of the house and go for a walk at the local conservation area. I agreed because it has benches placed along the pathways for people to sit and rest. We took some birdseed with us. We had fun holding the seed in our hands and letting the birds come to us to eat. I had Chickadees, Northern Flickers and even a Downy Woodpecker land on my hand and gently take the seeds. When the birds land on your hand, it tickles and you don't even feel them take the seeds from your hand. The wind was cold and bitter on Sunday so we didn't stay out long. I did have to avail myself to the benches along the way in order to rest. It was nice to get out into the fresh air.

On Monday evening, Hubby and I went for a walk in the local mall. The last time I did the "mall walk", I was able to walk 75% of the mall before I had to sit and rest. This time I was able to walk the whole mall and climb the stairs to the second level at the end in order to go to the car. After reaching the top of the stairs, I had to rest on benches just inside the mall doors. This was progress though because I had walked the whole mall. After we got home on Monday night, Hubby and I settled into his man cave and watched two episodes of "Outlander" that we had missed while I was in hospital.

Tuesday, I enjoyed an afternoon walk with one of my good friends who lives around the corner from me. I was pleased that I was able to walk the distance although I'm not walking as fast as I used to. That will come. My friend and I enjoyed a lovely time of catching up after our walk. Tuesday evening, Hubby and I watched three more episodes of "Outlander". I really love this series of books and I'm enjoying the television series just as much.

I must add here that it is important for me to go to bed by 9 or 9:30 at the latest. If I go to bed any later than that, then I don't feel as well the next day..

On Wednesday (yesterday), I got myself up and going so that I could go to the Hospital Auxiliary's Christmas Bazaar. I drove Hubby to where he had to work and then drove the car to his office and parked it. I walked to the hospital from his work. I used to do this on a regular basis, but this is the first time I've attempted that walk since I've been home. It was a little daunting but I managed to do it. Then I still had to walk throughout the hospital and through the Bazaar. This was maybe more than I was ready for. I did manage to also visit my co-worker in the hospital. She had a baby boy on Monday. I was glad I got to see her before she was discharged to go home. By the time I made my way back to the Bazaar, I had to rest. I had bought a "refreshment ticket" for a cup of tea and a scone so I took advantage of the tables that were set and I sat. At that point, I enjoyed my tea and scone. I also enjoyed several visits with co-workers and volunteers that I have worked with. I did manage to pick up a few items for stocking stuffers and a baked good for Hubby and I. It was sticky buns with nuts and green & red cherries. We had a couple for dessert and they were delicious! After dinner, Hubby and I settled back down into the man cave and watched the last episode of Outlander. We are now caught up and ready for the next episode which will air on Sunday night.

Today, Thursday, I'm looking forward to going out with my cousin-in-law in the afternoon to another Christmas Craft Show and then dinner out with Hubby. I may even get some grocery shopping done in the morning if I feel up to it.

Saturday, 25 November 2017

Day 26 - A Reality Check

I was so hopeful and looking forward to going to the Jingle Bell Tea at my church this afternoon. Unfortunately, my body decided to give me a reality check this morning which changed my plans. I had my breakfast and I took my pills. I was feeling very tired and also could feel my bowels getting ready to move.

I was glad that there was going to be movement as it means that my body is getting back to normal with regularity. Unfortunately, my stomach also decided to heave at the same time. I still was hoping that I could rest and get myself back to normal so that I could go out to the Jingle Bell Tea. This was not to be.

My taste buds have been soured for the full day. I did eat a piece of toast with butter for my lunch and then had some chicken noodle soup later in the afternoon. The day wasn't a complete waste as I managed to make some chili that is our traditional meal during on Grey Cup Sunday. I did have a small bowl at supper tonight. So far everything is staying down but my taste buds are definitely soured.

Here's hoping that I will continue to be settled tonight. I'm still hoping to attend church in the morning.

Friday, 24 November 2017

Day 24 and Day 25 - Embracing Life As Best I Can

Day 24 - Thursday, November 23

I spent my morning carrying Christmas tote boxes from the basement to the living room. I was hoping to begin the process of putting up my Christmas tree in the living room and also start displaying my Christmas decorations and figurines. I overestimated my ability to do these things. Just carrying the boxes upstairs tired me out for the morning. I held onto a faint hope of being able to decorate in the evening.

In the afternoon, I went for a lovely walk with my cousin-in-law who now lives in Kingston. We enjoyed our visit while I got some much needed exercise. I was very pleased with myself in that I was able to walk somewhat briskly. I was very tired by the time I got back home but we walked several blocks. We continued our visit. We seem to have a connection at various intellectual levels. We have some similar interests and this feeds our conversation. I am enjoying this newfound friendship. It is the first time ever that I have had family in the same city as me.

Due to my walk, I was too tired in the evening to decorate. I had a great day and I can always start the decorating tomorrow. However, I was able to do a load of laundry and get it dried.

Day 25 - Friday, November 24

When I awoke this morning, I was feeling a little weak and dizzy. Oh, oh! This means that I didn't drink enough yesterday. I'll have to do better with that today. I fed my cat, Frodo, and then I went downstairs to get the laundry that I had done last night. I took it out of the dryer, folded it and brought it upstairs. Now I had to sit. Who would have thought that I would take satisfaction in just folding and carrying laundry up the stairs. After resting, I made some coffee as it can count as part of my hydration and I really like my cup or two of coffee in the mornings. I realized I needed to rest for a bit, so I picked up my knitting (another sock) and worked quietly away while I rested. Hubby was very tired and sore as he had volunteered with Habitat for Humanity yesterday. Finally, my coffee was ready and I got my first cup. I sipped on it while I continued to knit. Hubby awoke and slowly made his way to the couch with his coffee. I feel so bad for him. I worry about him too because he is out of shape and he worked hard physically yesterday. Anyway, we enjoyed our coffees and then it was time for me to get my breakfast. My body was feeling better already.

After having my breakfast, I continued to knit until I finished the one sock. Now I was motivated to get decorating. But....it was now lunch time. So I made myself an omelet and a salad. After lunch, I managed to get the tree up but only partially decorated before I ran out of energy. While I was working on the tree, I was listening to Christmas music and then I found a lovely Christmas movie on television which I enjoyed.

In the afternoon, a parcel was delivered with my Hubby's name on it. I called and let him know it had arrived. He specifically told me not to open it. OK...Christmas is coming up and who knows what he has been buying and for whom. Also in the afternoon, a friend of mine delivered 3 jars of my favourite relish that she makes. What a gift! I love to use her relish on my sandwiches and hamburgers. Most likely, the jars won't last long.

Also, in the afternoon, Hubby called to say that he would pick up my pizza on his way home. He is off to a concert with another friend this evening and I was going to treat myself to a Hawaiian pizza from our favourite pizzeria in town. They make a great crust and their pizzas are never overdone. For those who don't know, a Hawaiian pizza has ham and pineapple along with the mozzarella cheese and pizza sauce. When Hubby arrived home, we enjoyed some pizza together. Then it was time for him to leave. I met his friend at the front door as I am also good friends with him. It was great to see him. He came to visit me while I was in the hospital and I really enjoyed my visit with him then. We're also friends with his wife who I last saw in September.  Tonight, she sent with her hubby some gifts for me. She sent me a magazine and 2 soap pumps with Christmas scents.  I have read the magazine tonight and then I watched some hockey and also the Christmas shows "Frosty the Snowman" and "Frosty Returns". These have been cartoons that I have watched since I was a child. It is part of the Christmas tradition.

I love Christmas and the season of Advent. I think my favourite part is Advent where I find my soul is prepared in a peaceful manner for the anticipation of Christmas. I am much more attuned to the sacred part of Christmas rather than the consumerism and materialism of Christmas. My favourite decorations in my home are the ones with a sacred meaning. I light my Advent wreath with its candles every day during Advent and reflect on the meaning of each week in Advent. I also love my nativity scene that includes a wooden stable that a very good friend made for me about 26 years ago. I also treasure my nativity decoration that hangs in the window. It used to have lights that would light it up at night but they stopped working a number of years ago and there is no way to fix it. I love this decoration in my window because during the day, the daylight brightness shines through it and makes it glow. I have even found some Christmas tree ornaments that show the 3 Kings following the star.

Christmas has always meant a lot to me. I remember being pregnant during Advent when my daughter was born on Christmas day. It is a very special time. On top of all this, I truly love the family time that we share over the holidays. I find this year I am feeling even more sentimental about Advent and Christmas due to my major illness and treatment. I have so much to be thankful for. I'm not just thankful for my health, but also for all my friends and family that have been so very supportive throughout the last number of months. No wonder I'm embracing life as best I can.

Wednesday, 22 November 2017

Day 22 and Day 23 - Rest, Concert and Graduation from the Stem Cell Unit

Day 22 - Rest and Concert - Tuesday, November 21, 2017

After my busy weekend, I rested all day Monday but did go shopping Monday night in order to get some walking and exercise. I rested a little more on Tuesday as I wanted to have enough energy to go to dinner and a concert with another couple. I did get some exercise on Tuesday by doing a load of laundry and hang it outside on the line. This tired me so I rested for the rest of the day.

Hubby came home from work to pick me up and go to the restaurant to meet another couple who are our friends. They very generously offered us 2 tickets to see "Simon & Garfunklel: The Story" at a local theatre. Our dinner was a great time of conversation and visiting. The concert was really well done. Although, I was a little tired, I totally enjoyed the music as I let it wash over me. I stayed awake through the whole concert but was tired at the end.

I was thirsty when Hubby and I got home. I believe it was the French fries that I had. After having a glass of milk, I went off to bed. I slept through the whole night! This is only the second time in many months.

Day 23 - Stem Cell Unit Check Up - Wednesday, November 22, 2017

After a busy night last night, I had an 8:00 a.m. appointment at the Stem Cell Unit this morning. I have much to be thankful for and also to celebrate!  My blood counts are continuing to climb and are almost at the normal point. I didn't need any hydration today! Woo Hoo!!! This is a big accomplishment!

I received two surprises at my appointment this morning. Not only was my picc line removed but I have graduated from the Stem Cell Unit. My file will be transferred back to my hematologist for him to follow me at the Cancer Centre. I am so relieved to have the picc line removed! I get my best sleep when I sleep on my left side. Since August, I have had to sleep either on my back or on my right side. I've been sleeping best while on my back. I can now go back to sleeping on my left side. Let's hope that I will have better sleeps.

When Hubby picked me up from my appointment today, I told him my good news. His response was that we need to have a celebration tonight which translated means we'll go out for dinner before we do some shopping and walking tonight.

Life is good!

Sunday, 19 November 2017

Day 19 - Extended Family Christmas

After my check up on Thursday, I made the decision and plans to travel 4 hours on Friday to my brother's home. That's because yesterday was our extended family Christmas. This is when all my aunts, uncles, cousins, my siblings, my nieces and nephews, my cousins' children and also their children all get together for a Christmas dinner and gift exchange.

I look forward to this every year. The only people who are not there are the people who have passed away (my grandparents and my father). There are always lots of various conversations taking place at the same time. There is always lots of laughter. And there is always the happy sounds of children playing. There is always lots of food and it is a day of controlled chaos.

As I was heading into my stem cell portion of my treatment, I had let my cousin, who was hosting this year, know that I would not be able to make it. I expected that I would either still be in hospital or just being discharged. On Tuesday, November 14, I was feeling really good and had the kernel of an idea of attending the family Christmas. I mentioned it to Hubby and we decided to make our decision after my check up on November 16. My nurse practitioner gave me her blessing to attend as long as I ate well and stayed hydrated. I called my brother on Thursday and contacted my cousin to let them know I was making the 4 hour drive to the area and I would be there on Saturday.

On our drive to my brother's home on Friday, I fell asleep while we drove through Toronto. We had a lovely visit with my brother and sister-in-law on Friday night. I did go to bed early as I was tired and wanted to be rested for the Christmas party.

Yesterday, I awoke and had my breakfast and visited with my brother. Then it was just a time of relaxation as we waited for my son to arrive at my brother's and for my brother to go and pick up my mom. Neither my son or my mother knew I was in the area, let alone attending the family Christmas. While my brother was away to pick up my mom, my son arrived. He was very surprised and pleased to see me when he made his way into the room where I was relaxing. My mom was very surprised when I said, "Surprise!" from the bottom of the stairs as she came in the door. She had not noticed our car in the driveway. We all visited for a bit before it was time to leave for my cousin's home.

We were one of the first to arrive, so I found a comfy spot on the couch in my cousin's living room where I could see the front door. As my extended family arrived, I said "Merry Christmas!". The extended family was overjoyed to see me in attendance. We had tentatively planned to do a live video chat with me at home so that I could be part of the celebrations. Numerous family members mentioned that my being there in person was the best Christmas present. We all agreed that this was an extra special day.

I loved watching the little children play and run around. I loved visiting with my aunts and my uncles and my cousins a well as my siblings. This was a fantastic day. I ate a full turkey dinner with all the trimmings. I enjoyed my aunt's homemade pies. I enjoyed the casseroles for the dinner later on. I drank all the water I was supposed to. It was a fantastic day! I was very tired at the end and when Hubby took me back to my brother's home, I went right to bed. It was the first night in ages that I slept 9 hours straight. Perhaps it was too big a day, but I would do it again in an instant. Family is so important and it is worth making a long trip to see them all.

Thursday, 16 November 2017

Day 17 - Check Up and Living Life Fully

This morning I had a check up at the Stem Cell Unit. My blood levels were all good and I didn't need any boosts. After chatting with the Nurse Practitioner, I am committed to drinking tons of liquid and getting my exercise. We are going to try a trial run of no supplemental hydration. I have been given permission to enjoy some activities where I am surrounded by lots of people.

I will have another check up next week and hopefully, if all goes well, my check ups will become weekly and I will have my picc line removed next week. This would be wonderful as it is in my left arm. I have always slept best by sleeping on my left side. For the last number of months, I've had to sleep on my back so I'm really looking forward to being able to return to the most comfortable position of sleeping on my left side.

I'm so excited to be able to visit people and go to an upcoming concert on Tuesday. Hubby and I have been invited to attend a Simon & Garfunkel tribute band concert with some friends. I'm really excited and looking forward to seeing our friends and going to the concert. I am really ready to enjoy life fully. I will build in time to recover and rest but it is so exciting to participate in some of the upcoming Christmas activities as well. I am ready to celebrate life and embrace all opportunities to enjoy family and friends. Life is short but now is the time to reward myself for the trials of the last number of months. Now is the time to enjoy life to the fullest.

Wednesday, 15 November 2017

Day 16 - Exercise and Hydration

I continue to have to strive to walk more and drink more liquid. After chemotherapy, people are more susceptible to getting dehydrated very quickly and without realizing it. Today, I had another one litre of saline solution by IV. I really want to get off of this and I'm really trying to drink enough liquid and stay hydrated. I also have to walk more so that it will help boost the blood levels. So tonight, Hubby and I finally made our way to the local mall to walk for exercise. I managed to walk 75% of the mall before I had to sit and rest. I walked farther than I expected myself to be able to do. I walk slower than I used to, but I'm hoping that eventually I'll get my speed up again.

Today, I struggled with lack of appetite and some nausea. I believe the nausea was caused by having a hungry stomach and I was late feeding it. Unfortunately, at that point, the food I ate didn't stay down. I waited for my stomach to settle while I continued to drink some tea. Then this afternoon, I was able to eat a banana and it stayed down. I'm hoping it will help to boost my potassium.

Today I really felt cold for most of the day and I was wrapped in both my prayer shawls. My cat, Frodo, helped to keep my legs warm by sleeping on them all afternoon and evening. I continue to spend my time knitting socks. Yesterday, I started on the second red sock of the size Large pair that I'm working on. I hope to finish it tomorrow. Then, I'll probably start a pair of size Small red socks.

Tomorrow morning, I have a check up at the Stem Cell Unit and I'm hoping that I can convince the nurse practitioner that I don't need supplemental hydration anymore. We'll see how the appointment goes.